Charles Bonnet Syndrome

For the past few months Bear has been seeing things – patterns on the wall, butterflies, people wearing hats or masks and even a parrot behind the computer.

He had also been suffering from bronchitis and a urine infection so the doctor put it down to fever and/or low blood sugar as he wasn’t eating properly. One of the carers also suggested it could be due to dehydration as he refused to drink because he wanted to wee all the time.

However, after these causes were over, he still experienced hallucinations.We know his sight is failing because of Macular Degeneration but as far as I knew this meant that straight lines could be seen as wavy ones and a blurred patch could occur in the middle of his field of vision. Could these vivid objects be caused by his eyesight?

Well, according to a recent Google search, the answer is yes. I discovered Charles Bonnet Syndrome and this almost exactly describes his symptoms.

It’s a relief to know that there could be an explanation that doesn’t involve losing his marbles as he was getting quite worried and frightened. The visions are extremely real to him and he got cross when I said I couldn’t see them. Now he is more reassured that this may be the answer to his problems.

Of course, we need a doctor to confirm it but there’s no way they will put forward his eye appointment in August (ophthalmologists .are few and far between so waiting times are terribly long) but I have managed to arrange for him to see another specialist in the next Departement in early July.

Has anyone had experience of people with Macular Degeneration and if so, have they, too, had visions like this?

6 Responses to “Charles Bonnet Syndrome”

  1. Pontillius Says:

    Hi Sandy, I know of this condition because my mother had the same problem, but I never knew it had a name. She used to actual hold a conversation with these people from her past. It was eerie seeing her talking to nobody, even looking at a certain place in the room as if they were really there,and pausing while nobody there answered her, and then carried on the conversation. Weird!

    • sablonneuse Says:

      It’s good to know about other sufferers from this condition. Bear sees people too but, so far, hasn’t spoken to them. However, they are very real to him.

  2. lom Says:

    My granddad had something like this and like Keith I never knew it had a name, I don’t think any of us did. We put in down to him being old and a bit batty.

    • sablonneuse Says:

      What a coincidence that both you and Keith have seen relatives with the same symptoms. No-one here seems to have thought it might be due to poor vision – let alone heard of the name.

  3. guyana_gyal Says:

    Maybe it happened to old folks I know…that they saw things, people, talked to them and we all thought it was just old age!

    My grandpa used to see things, but we thought it was the med he was taking for Parkinson’s. Who knows now?

  4. lom Says:

    I wonder how many people have this and their nearest and dearest just think they are going batty.

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