“Oh b****r Vero!” I heard this morning as I was getting the newspaper out of the letter box.
The nurse had just been and it sounded as though she’d done something terrible.
“Vero’s left my water out of reach.” he complained.
Anywhere he goes he cannot bear to be separated from his bottle of water and plastic cup. Not even for the fifteen minutes or so it takes to clean his bedroom. It’s the same old ritual. He moves into the next room but wants you to bring his book, his glasses, his water and his cup. Anyone would think he was going to die of thirst!
Usually I can make light of the peculiarities of life in our household but, of late, a rather more serious note is creeping in:
Whale seems to be much more irritating and I’m becoming more and more irritable with him.
This makes me feel guilty because he doesn’t do it deliberately and, after all, he doesn’t lead a very interesting life. He’s handicapped, rarely goes out and the rest of the family don’t have alot to say to him.
He can no longer stand up without help so, as he gets uncomfortable in the same place for more than a couple of hours, he is constantly calling out. Even if he can see that I’m in the middle of preparing a meal or washing up he still wants to ‘borrow a foot’ to get into his wheelchair or go back to bed.
So he’s a lonely prisoner. But a very annoying one!
Of course, he can’t be expected to realise that I’ve only just sat down with a cup of coffee when he calls out for something that isn’t urgent.
As far as he’s concerned, if I’m busy on the computer, i’m not doing anything important or interesting and therefore I’m fair game to be approached to provide a translation for whatever he’s silently rehearsing to say to the nurse/doctor/physio – or to drop everything and see if he has an email.
Needless to say, he does have problems but he tends to make a great deal of fuss over minor things. Take his ‘brown spots’ for example. He plagued the doctor until she gave him a letter to see the dermatologist. A visit to Dr. R is a major problem because his surgery has three steps at the entrance. We tried to take him in his wheelchair but couldn’t manoeuvre him inside (he weighs a good 100kilos). That appointment had to be cancelled and we tried again via ambulance. We don’t actually have to pay for this transport but it costs well over 100 euros and it is a bit of a waste just to remove a few warts for purely cosmetic reasons. The dermatologit assured him there was nothing malignant but he’s still clamouring to go back and see him again because he has found some more warts.
He has succeeded in annoying the nurses, the physios and the ambulance men and even our GP is losing patience with him.
Last night, as I was doing the ‘bedtime chores’ he said wistfully,
“I haven’t seen much of Jay and CC. They don’t come and talk to me any more.”
I made a mental note to try to be more patient – but it ain’t easy. . . . .